Thursday, December 2, 2010

When Exercise doesn't help

Clinic was horrible. Back down to 23%. I seem to have a new routine. Last year, in the summer, I dropped 80 mL. This resulted in an October admission, which brought me back. Followup for that admission showed me back down 80 mL. Here we are one year later, same timeframe, same drop, same admission, same followup. One difference, however. This time, I took action in between.

My physiotherapist started me doing 20 mins of bike every day in the hospital right before physio. She said it has shown to have a mucolytic effect, and helps physio be more productive. We found, since we started it halfway into my admission, that this proved true. I went home, and started biking 20 mins a day on my home bike. Soon after, we went out and dropped $500 on a brand new, Schwinn recumbant bike, thinking the cost of it will be more than worth it for all the benefit we'll both get.

I'm not saying the bike did absolutely nothing. Far from it. I'm sure my heart and other muscles are more toned now than they were 5 weeks ago. However, I kinda had a tiny hope that this might help my lung function stay where it was when I left the hospital. Even CLOSE to it. No such luck. Its pointing scarily towards permanent damage, which of course is inevitable but I can't help but be awed at how infrequently I seem to be infected and yet how I drop this way. Even on admission, my white count was 11.96, and 10 is acceptable to them. I have friends who come in at 18. I don't know.. I just don't get it.. and if I dont manage the bike tonight, it will be 3 consecutive days not doing it.. I am determined to not give up, but sometimes i think 'man, throw me a bone, universe!'.

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