As April Closes

Hmmm new new... I struggle with new stuff for the blog lately, which is sad because I'm barely writing once a month.

My health is stable it feels at least.. clinic hasn't let me in for my standard once-a-month check because they've been busy, but I go next week to see what the numbers show. Apparently this week had a few cancellations and was "practically dead"... no doubt my scheduled-in-advance-by-3-weeks appt will be overloaded and packed. There is no organization, no matter what they try.

Lately I've found myself organizing everything around here, especially health-things. It feels like something that improves my world, as opposed to the worsening that is constant in end-stage CF. It's uplifting. I put hooks on the wall to store the excess O2 hose, as well as one that I can loop the nasal prong part onto right beside my bed. Since I pretty much only use oxygen for sleep around here for now, it works wonderfully.

I'm still eagerly awaiting my sister's child's birth, but still 3 months to go. 3 very important months that will be both fast and excruciatingly slow. It feels a world away.

My husband has some vacation time coming up next month, and its hard knowing that travelling anywhere has become harder as of December 2010 (because of oxygen at night). If you talk to me about anything involving going away, you might get the impression I have grown tired of it in my life, but you couldn't be more wrong. It comes up alot in my family, because we've always enjoyed adventures together both small and large. From a day at the zoo, to quaint northern adventures, to luxurious caribbean cruises. When we talk about it now, I visibly shrink. I know I do. I've always been very expressive. When no one is talking about travelling, I barely think about it. I know those days will return.. but for now I put them away and enjoy life as is.

Anyways, so I'm not sure what the complete plan is for my husband's 2 weeks off, but I do know we've talked about renting a jacuzzi for our backyard. They have a company around here that rents them out weekly and will even let you keep it at no charge for a few extra days if its not needed for rental immediately after you have it. We've always enjoyed our jacuzzi time, and since there are some strong restrictions around them post-transplant, we may as well jacuzzi it up wherever and whenever we can now :)

Here's to enjoying life, whatever its restrictions, because it's beautiful and short. I do it for me, and in honour of people like my friend B who I miss very much right now and is needing prayers in the icu of our transplant hospital.... as she fights a mysterious problem the doctor's can't figure out...