Clinic results

My lung function at clinic yesterday looked more like what I would've expected to see last week when I felt rough. 0.78 litres. My all-time low. I've had it once before. Last time I had a fever and looked like death. This time, I look fine and feel pretty peak (or what has become peak). Weight-exact same, O2 sats-better. FVC-better. FV-what? I found it odd that while not seeming terribly worried about my drop in lung function,my doctor quoted a number I was previously told basically to ignore. I still want to know more about that value, but will have to wait to grill them at next clinic (which has been slated for my typical month interval).

I wanted to share what I was given after asking about the cyclic issues I have with shortness of breath. Besides things like doubling my pulmocort and pulmozyme during the most difficult time of the month, my doctor suggested the birth control pill. Apparently it smooths out the peaks and valleys of hormone changes and therefore can ease some of these symptoms for CF'ers (and asthmatics apparently). She said that it has mixed results with people. Either they notice it helps alot, or they don't. So I'm probably going to give it a shot soon, once I sort out how to get back up a few ml to a less scary FEV1. Useful information I think.

I was also told my transplant assessment may take a little longer than expected to get moving because several more urgent patients have materialized all of a sudden, and the docs feel I can wait. I would've agreed until this clinic.

That's really it for now. Ive been trying to stay busy today to both move my body and help that lung function, and because I feel relatively well so I want to make use of it!