Life since discharge has been unpredictable at best. I'm so happy to be home but I don't know whats going on health-wise. I don't want to drag out the details, but I've seen coughing up blood, chest pain with exercise, and complete lack of energy in the few days I've been home. I have a month till followup and I've decided to go the route of so many inspiring, blogging Cf'ers and take my feelings about this out on my exercise/physio routine.
My goal looks like this right now.. Every day for the next month I'm going to do an extra physio every day (2 vs my usual 1), swim for 20 mins or more every Wednesday afternoon, use my stationary bike for 20 mins every night, and I'm working on signing up for a weekly dance class too (but that's probably more like next month). Too much? I'm not sure.. but I'll be careful.** note: the previously mentioned symptoms are not constant, but sporadic and all once-occuring only..
In other news, my Grandad who is healing from his recent heart-attack graciously figured out the pattern to my little kleenex-box covers I've been wanting to make and sell, and it seems I'll be up and in production soon. I'm happy about this, but again, its something I'll have to commit to, and thats not really my gig.. committment. Not with hobbies at least ;) .. I'll post a pic of mom's first attempt using Grandad's pattern, versus the originals that were made by my friend of a friend of a relative.. they are close! I can't wait to let mom teach me the ropes of this sewing thing and get started.
Hopefully all my proposed hardwork in the following month will bring an increased/stable lung function, a higher quality of life, and some dough to put towards either a surrogate fund, to support CF, or a little bit of both!
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